Down Syndrome Organizations and Information

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Monday, April 20, 2026

Down Syndrome-Specific Organizations & Resources
Down Syndrome Association of Toronto (DSAT) - Useful Links	Down Syndrome Diagnosis Network (DSDN)
National Down Syndrome Congress (NDSC)	Canadian Down Syndrome Society (CDSS)
Children’s Hospital of Eastern Ontario (CHEO) - Down Syndrome Resources	Children’s Hospital of Eastern Ontario (CHEO) - A to Z Health Resources
Sea to Sky Community Services - Down Syndrome Resources	Friendship Circle - 42 Top Down Syndrome Resources
IAHP - Trisomy 21 (Down Syndrome) Resources	Parent Center Hub - Special Needs Resources
Down Syndrome Online	Down Syndrome Diagnosis Network - Resources for New Parents
How to Make a One-Page Profile - Ellie Style	Down Syndrome Resource Foundation - Information in Other Languages
Sign Language in Early Intervention - LifePrint	Educating Kids About Down Syndrome - Down to Life Blog
Helping a Person with Down Syndrome Through Grief	Down Syndrome Pregnancy - Book: Your Loved One is Having a Baby
Free2BeMe - Documentary Film on Down Syndrome	Freya Heart Blog
Gigi’s Playhouse - Best of All Program	Down Syndrome Australia - Communication & Language Resource (PDF)
Down Syndrome Canada - Education Resources	Teach Special Education - Down Syndrome Resources
Down Syndrome International (DSI)	Global Down Syndrome Foundation - About the Anna and John J. Sie Foundation
Reece’s Rainbow	Adult Down Syndrome Center - Advocate Health
Down Syndrome Medical Interest Group (DSMIG-USA)	Jack’s Basket - New Diagnosis Support for Down Syndrome – USA-Wide

General Information on Down Syndrome
Down Syndrome International - About Down Syndrome	Global Down Syndrome Foundation - About Down Syndrome
Down Syndrome Resource Foundation - What is Down Syndrome?	National Down Syndrome Society (NDSS) - About Down Syndrome
Down Syndrome 101 - Online Course	Stanford Children's Health - Mosaic Down Syndrome
Mosaic Down Syndrome Research Study	Self-Talk in People with Down Syndrome - Advocate Health
Acute Regression in Down Syndrome - Research Paper (PDF)	Massachusetts General Hospital - Down Syndrome Patient Handouts
Common & Uncommon Health Conditions in Down Syndrome - Webinar 2024	Massachusetts Down Syndrome Congress - Resource Center
Alzheimer’s Canada - Down Syndrome & Dementia

Literature & Media on Down Syndrome
Supporting Positive Behavior in Children and Teens with Down Syndrome (Amazon)	Down Syndrome: The First 18 Months [Import]: Amazon.ca
Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges (2nd Edition)	Boyfriends & Girlfriends: A Guide to Dating for People with Disabilities (Amazon)
When Down Syndrome and Autism Intersect (Amazon)	Teaching children with Down syndrome about their bodies, boundaries, and sexuality : a guide for parents and professionals : Couwenhoven, Terri
Whole Child Reading: A Quick-Start Guide to Teaching Students with Down Syndrome and Other Developmental Delays (Amazon)	A Guide to Good Health for Teens & Adults with Down Syndrome (Amazon)
Teaching Reading-Children W/Down Syndrome: Logan Owlwein, Patricia	WHAT DID YOU SAY: A Guide to Speech Intelligibility in People with Down Syndrome
The Girls' Guide to Growing Up: the best-selling puberty guide for girls	The Boys' Guide to Growing Up: the best-selling puberty guide for boys
Gross Motor Skills for Children with Down Syndrome: A Guide for Parents and Professionals

Partner Organizations and Additional Down Syndrome Resources
Canadian Down Syndrome Society	Down Syndrome Research Foundation
National Down Syndrome Congress	National Down Syndrome Society
Disability Services	PREP Program
Special Olympics Edmonton	Shifting Perspectives at the Dublin Arts Council
Reece’s Rainbow	Soar: Adapted artistic swimming for athletes with disabilities